Lastly, we identified any potential links between doctor—caregiver disagreement and characteristics of the caregiver's profile age, sex, educational level, emotional state, time spent caring for patient, personal relationship and living arrangement with the patient or of the patient's profile age, sex, disease progression timeline, GDS Reisberg scale stage, score on the MMSE. The results of this study show that there is a significant difference in the way doctors and AD patient caregivers perceive the information which the doctor presents and that which the caregiver assimilates.
With this purpose in mind, we aimed to identify the main factors associated with the differences in how information is perceived by doctors and caregivers in order to propose ways to improve communication in the process of caring for patients with Alzheimer's disease.. Prior studies have uncovered differences in how information about illnesses such as Alzheimer's disease is perceived. However, up to now, most of this evidence has been obtained from largely descriptive studies 3 that to a certain extent lack a methodology for systematic analysis and are undertaken in order to establish general clinical guidelines for treating patients.
These results provided a more in-depth view of the reasons why caregivers are frequently unable to retain useful instructions intended to promote patient stability and a more favourable course of the disease.. Overall, our study shows that medical specialists need to have more time for consultations with patients. It also reports that the sociocultural characteristics of patients and caregivers language, educational level, etc.
These factors are very well known, not only in the field of AD management, but also in most of the illnesses treated in neurology consultations and specialty centres. They feel that they do not have enough information, even if they do appreciate any efforts made to keep them informed.. Our study differs from other current studies in that it refers to specific and well-defined areas of information transmitted to caregivers and patients. It lists areas of information that need improvement in order to improve communications between medical specialists and caregivers.
This is especially true in the context of a serious illness like Alzheimer's disease, which imposes significant physical, economic and emotional burdens on the caregiver. Our study shows that caregivers of AD patients gave a positive rating to information they received regarding the concept of the disease, treatment recommendations, and treatment dosage. In clear contrast to the above, medical specialists were especially satisfied with the information they presented to debunk preconceived notions and warn caregivers about risk situations, and information on family associations, support groups, and similar resources.
This obvious disparity in the subjective assessments of the information provided and that received with poor objective values for concordance highlights some of the communication problems present in neurology departments when following up on patients with AD. Leaving aside the discrepancies identified by the analytical tools used in our study, identifying those factors directly associated with the level of disagreement was problematic. We were only able to link the stage of AD progression to differences in perception of the information presented and that retained. Therefore, for more advanced stages of AD, we observed increased agreement between medical specialists and caregivers regarding information.
This association could be related to the benefits of early diagnosis which caregivers report; early diagnosis may facilitate the assimilation, understanding and processing of information about the disease. In addition, it may be helpful in planning future care, 27 in spite of the increasing responsibility and burden assumed by the caregiver as the physical and mental state of the AD patient worsens. Such a finding calls attention to the importance of a properly integrated approach to providing information on AD. This vision takes into account the three basic pillars of the care process: In conclusion, we should highlight that this study revealed significant discrepancies in the way the 2 groups medical specialists and caregivers of AD patients perceive information.
For 10 of the 17 areas of information that were assessed, the information presented by the doctors and received by the caregivers was rated differently. The results of the study show that the doctor-patient communication process must be improved in order to optimise the quality and quantity of the information that caregivers effectively receive and retain. In this way, the excellent service they provide to our society will become increasingly efficient and sustainable..
Molinuevo has received fees as a consultant for the following pharmaceutical companies: Please cite this article as: The members of the Group are listed in Appendix 1 at the end of article.. Previous article Next article. October Pages Assessment of the information provided by the medical specialist on Alzheimer's disease and that retained by the patient caregivers. This item has received. Show more Show less. Introduction There is evidence of insufficient communication abilities by medical specialists as well as of the limited retentive capacities of patients with Alzheimer's disease AD and their caregivers.
The main reasons for this include the personal limitations of the physician, as well as external, emotional and social-cultural factors associated with the patients and their caregivers. The aim of this study is to compare the clinical information on AD provided by the physicians and that perceived by caregivers and to assess factors associated with differences in perception. Patients and methods We carried out an observational national multicentre study based on questionnaires assessing the information provided by the physician and that retained by the caregiver for 17 items of information.
We evaluated the factors associated with the difference in perception of the information that was transmitted. Results Participating caregivers had a mean age of Conclusions Many areas of information showed large differences in perception between physicians and caregivers of AD patients, which highlights the need to improve the communication process in order to achieve higher quality. Entre las diversas causas figuran tanto las limitaciones personales del profesional como los determinantes externos, emocionales y socioculturales del paciente y de su cuidador.
Introduction As life expectancies increase in developed countries, Alzheimer's disease AD is becoming the leading public health problem associated with the ageing population. The caregiver's personal preferences should be considered when choosing among different treatments.
As a result, caregivers may perceive the information as excessively cryptic, even though doctors feel that it has been presented properly. It may also identify information on AD that is difficult for caregivers to understand, and areas in which the caregiver's judgment, attitude, or care may need improvement. Patients and methods The current study was carried out by gathering written questionnaires with similar content that were administered simultaneously to doctors and caregivers of AD patients.
All selected patients are typically accompanied by their caregivers during specialist visits, and both patients and caregivers were required to sign an informed consent form. Caregiver-patient pairs were excluded if caregivers were unable to respond to the study questionnaire due to their educational level or a language barrier. The first section recorded the caregiver's sociodemographic profile and psychological state, and the second section evaluated the applicability of the information about the disease and its treatment which was presented to the caregiver during the consultation.
Sociodemographic and clinical description of AD patients We recruited a total of patients who met all selection criteria. Table 1 A includes all of the demographic and clinical data.
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Sociodemographic and clinical data of the patient A and the caregiver B. The statistical significance of any differences between ratings provided by the 2 groups was determined using a Wilcoxon signed-rank test for matched pairs. Prevalence, resource utilization and costs of vascular dementia compared to Alzheimer's dementia in a population setting.
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Print Send to a friend Export reference Mendeley Statistics. An assessment of telephone assistance systems for Perceived quality in a dementia unit: Prevalence and concordance between the clinical and the Si continua navegando, consideramos que acepta su uso. To improve our services and products, we use "cookies" own or third parties authorized to show advertising related to client preferences through the analyses of navigation customer behavior.
Continuing navigation will be considered as acceptance of this use. You can change the settings or obtain more information by clicking here. Se continuar a navegar, consideramos que aceita o seu uso. Dementia is a syndrome caused by a disease of the brain, usually of a chronic or progressive nature, where there is an alteration of multiple superior cortical functions, including memory, thought, orientation, comprehension, calculus, learning ability, language and judgment. Conscience is not altered and alterations in the cognitive function are frequently joined, and occasionally preceded, by an impairment of emotional control, of social behavior or of motivation.
In it was estimated that there were around There are many diseases which affect the brain, primarily or secondarily, and may cause dementia. In Spain slightly more than In economic terms, the yearly cost for of dementia in our country was estimated to approach Many of these patients start showing symptoms before they are Atypical beginnings may occur with different symptoms to memory loss, but they are unusual.
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